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Thursday, May 30, 2019

The testing of my faith

The testing of my faith has been delivered to me in a most peculiar way. Who in their right mind would call cancer a gift? And yet it has been, it has taught me so much, stretched me, blessed me. And yes, it has a ribbon of fear wrapped around and binding me on each side, a part of the package.
I do not want to live in fear. I want to live in JOY. I want to enjoy this life God has given me, each precious day, each breath, each moment. Yet it's not about me, is it? 
Count it all joy, my brothers, when you meet trials of various kinds,for you know that the testing of your faith produces steadfastness.And let steadfastness have its full effect, that you may be perfect and complete, lacking in nothing. 
What exactly is steadfastness anyway? 
stead·fast·ness
/ˈstedˌfastnəs/
noun
  1. the quality of being resolutely or dutifully firm and unwavering.

Oh. So these trials that test my faith - cancer, pain, parent challenges, work - they're producing steadfastness in me, making me "dutifully firm and unwavering", so that I may be complete and lacking nothing. 


If any of you lacks wisdom, let him ask God, who gives generously to all without reproach, and it will be given him. But let him ask in faith, with no doubting, for the one who doubts is like a wave of the sea that is driven and tossed by the wind. For that person must not suppose that he will receive anything from the Lord; he is a double-minded man, unstable in all his ways.
Let's be honest here. I lack wisdom. If wisdom is the quality of having experience, knowledge, and good judgment, then why am I so lost and confused? I have asked God to help me here...he has provided in the past and I can trust that he will provide again...but meanwhile I'm feeling very lost and confused. I don't know what to do. Perhaps I am doubting? I do feel like a wave of the sea that is driven and tossed by the wind. I do feel unstable. Lord, increase my faith! 
Last week, I got to spend some time with my family in California. I felt "off" the whole time I was there, but especially the last day. I realized that I'd had an upset stomach for weeks and it was not improving. I emailed my doctor from the airport as I was heading home. My doctor called me Friday and had me go in for labs. I had to go in for more on Tuesday. My prayers continue, pleading with God for healing, to be well, to be whole. As the lab results trickled in, I sank deeper and deeper. Despite this new medication, my tumor markers have more than doubled. The inflammation in my body is way too high. The calcium in my blood is at toxic levels. The bone strengthening injection I've been receiving since September should be pulling that to my bones to prevent a fracture. 
My doctor has instructed me to listen to my body and tend to my digestive system. I'm not getting the nutrients I need from the food I'm eating. I'm back on a very limited diet and keeping a food journal to try and figure out what I can tolerate. Every time I eat, my stomach rebels. I'd rather not eat. I feel like my system is shutting down, betraying me. 
12 Blessed is the man who remains steadfast under trial, for when he has stood the test he will receive the crown of life, which God has promised to those who love him. 13 Let no one say when he is tempted, “I am being tempted by God,” for God cannot be tempted with evil, and he himself tempts no one. 14 But each person is tempted when he is lured and enticed by his own desire. 15 Then desire when it has conceived gives birth to sin, and sin when it is fully grown brings forth death.
I'm trying to stay the course. I'm trying to stand strong. I. am. exhausted. I am so thankful for those that have stood alongside me and encouraged me when I feel overwhelmed by each crashing wave.  

16 Do not be deceived, my beloved brothers. 17 Every good gift and every perfect gift is from above, coming down from the Father of lights, with whom there is no variation or shadow due to change.18 Of his own will he brought us forth by the word of truth, that we should be a kind of firstfruits of his creatures.
Every good and perfect gift is truly heaven-sent. Thank you, Father God.  

Sunday, Charlie and I will drive up to Portland. My oncologists have referred me to a breast cancer specialist at OHSU Knight Cancer Institute. I have an appointment Monday morning to see a doctor that only sees breast cancer patients and specializes in early phase clinical trials. Please pray he has something helpful to offer that my other doctors have not yet considered. I'm feeling desperate. This cancer has been growing and spreading uncontrollably for the last year and a half. We need to get ahead of it to slow it down. 


Please pray for my sons. My oldest just announced tonight that he's found his first apartment. Praise the Lord! My youngest is struggling... thought he was handling things well, but I found out today that he is definitely not. We are working with his counselor but it's going to take time. He's afraid of losing me. He burst into tears today and I'm helpless to comfort him. Please pray.


One last prayer request- that I might keep my eyes focused on God and fully submitted to his will for me, that he gives me peace and comfort, wisdom and discernment. 

Thursday, May 2, 2019

Milestone and update

This weekend marks 3 years since the day my world changed. 3 years since I was told I had breast cancer. 3 years of fear and tears. 3 years of hidden blessings. Is this a milestone to mark or a day to ignore? I have no idea...I just know that I trust the Lord and his plans for me... even if I don't like them... even if I don't understand them...
My beautiful family, 11 days after learning I had breast cancer.
On Tuesday I spoke with my integrative oncologist and we finally got the results back from my liver biopsy. We were surprised to learn that the new tumors are hormone receptor positive (we expected a mutation since it was not responding to treatment). The tumor cells are also "briskly multiplying". She suspects that these cells are either resistant to the hormone blockers or the receptors themselves have been damaged in mutation. Both of my oncologists have consulted over my case and have determined that we need to change my treatment as soon as possible.
Ready for my double mastectomy
On Wednesday I saw my other oncologist (allopathic) to determine what happens next. We are currently awaiting authorization from my insurance to start Lupron, a monthly injection that will shut down my ovaries (stop estrogen production). It's side effects are similar to what I've already experienced with Tamoxifen but I'm told they'll likely intensify.

My sister came for my first chemo
Next, they plan to start me on Faslodex, "an estrogen receptor downregulator, this means it binds to the estrogen receptor site in competition with estrogen in the body. Once it binds to the site it causes the receptors to break down, thereby preventing normal cellular response to estrogen." ¹  These drugs will put me further into a chemically induced menopause in hopes of slowing down my tumor cell growth.
My son shaving my head when my hair started falling out in clumps
My oncologists also plan to put me on Ibrance, a fairly new drug. It "blocks proteins in the cell called cyclin-dependent kinase (CDK) 4 and CDK 6. In hormone positive breast cancer cells, blocking these proteins helps stop the cells from dividing to make new cells." ² The list of side effects for Ibrance are concerning to me, especially that I'll be neutropenic (low blood cell and platelet counts) putting me at risk in public and in my line of work. The high risk for blood clots in my lungs, mouth sores, and nausea... it's like chemo all over again.
Hyperbaric oxygen therapy helping me through chemo
My oncologist is also referring me to a breast cancer specialist at OHSU. She's hoping he'll weigh in with some helpful advice. Please pray that the trip up to Portland will be productive and helpful.
Opening my art studio in the middle of chemo. A dream come true. 
Meanwhile, I'm still trying to be MOM. My son needs me and I'm struggling to be fully present and focused on his needs while tending to my own. For his sake, I won't go into further detail but I do request your prayers for him and for Charlie and I as we figure out how best to help him. Please respect our privacy in this regard and do not approach or contact him, even with the best of intentions. Thank you.
From the photo shoot I was nominated for
I'm down to teaching only 2 days a week now and business has been really slow. "Really slow" is dangerous when I'm not working as much. I'm interviewing a woman this afternoon to potentially teach at my studio. Please pray this is a good fit. 

Ringing the bell when I finished chemo
I'm so incredibly exhausted all the time right now and I will not be working more unless I'm feeling better. I'm in constant pain right now and spend my time trying to distract myself from the mental and physical effects of all of this... without wearing myself out with the distractions. Netflix and books are my current BFFs. Feel free to send me your recommendations.
Preparing for breast reconstruction
Diagnosed with Stage 4 Metastatic Breast Cancer in my bones
Installing my infrared sauna 

Radiation

Discovered 10 tumors in my liver