1.3.2017 - It has been 216 days, or 7 months and 2 days, since the last time I was able to get in the pool. A week and a half before my bilateral mastectomy. I have missed my twice weekly aqua zumba class immensely but my doctor didn't want me in a public pool while on chemo. [Photo: The other day, I realized that a "normal" swimsuit would not do. I am thankful for my sewing skills to alter 2 swim tops into one that would work.] Today was the day!! Despite the snow, I went to swim, dance, and get hugs from the teacher. The locker room afterward required a huge amount of courage. All was fine until I sat to put my shoes on. 2 teen girls burst into the locker room and stopped when then saw me, then continued on. Then I hear this, clear as day-
Girl 1: "I thought about shaving my head once, but it's too ugly. I would never do THAT."
Girl 2: "Yeah, I would have shaved mine too if it wasn't so long now. Long hair is pretty. Buzzes on girls is ugly."
You're right, girls. Long hair is pretty. Short hair can be too. But neither will hide the ugliness of your rudeness.
Me, directly to them: "Don't be rude, girls. Battling cancer doesn't leave room for shallowness or vanity."
Friday, January 13, 2017
1.3.2017
1.2.2017
1.2.2017 - As much as I think selfies are silly, they've allowed me to document and record all the physical changes I've gone through this past year. Like my hair growing back. And eyelashes. Hallelujah 🎉
1.1.2017
1.1.2017 I love watching these guys play in the little bit of snow we got to start the new year. (And Zelda fetching snowballs 😉)
Thursday, December 22, 2016
1 month later
It's been one month since I had my last chemo treatment. I'm feeling better, feeling my energy slowly return, feeling stronger. And feeling like an emotional basket case half the time too. For the last six months, my mission has been in the physical fight, the doing, of beating this cancer. Then it was time to detox my body from these chemicals and all their effects. The past 2 weeks my emotions and mental state have been a mess. Even those need to detoxify and heal.
I met with a practitioner of eastern medicine (aka, TCM or traditional Chinese medicine). I had high hopes for what he might tell me. I received his protocol a couple days after my consultation with him. So much to process through and look up since I'm not familiar with Chinese herbs. The dietary side of things was no different than what I'd been doing. The supplements were mostly familiar but costly in the quantities he was recommending. The herbs and tinctures were downright EXPENSIVE. While I agree with the direction he's advising, I'm shocked at the total cost of the herbs and supplements. Add in acupuncture and I'm looking at $700-1000/month. (He estimated $200+/month in my appointment so this was a shock to me). No way!!
I feel like I have much of info I need and know how to research for more if I need it. What I was looking for was quantity and monitoring. Is that too much to ask? For instance, if I'm taking turmeric or vit d, I want to know who will tell me how much and how often. Why is this so hard (for me)?
While there are many options available, I wish there was a health...coach...locally that specializes in cancer care. For now, I'll just continue with my integrative oncologist. I'll see her next Thursday to go over the labs she called for yesterday.
What do I do if the stress of the expense is more costly than the alternative? How do I push past that??
So...I'm going to do my own thing for the next few weeks. Gently detox my poor body and start increasing my time exercising. And I'm seriously considering how I can afford a warm vacation to rest and rejuvenate my whole self. The question is how to make that happen. I'm open to ideas...
I keep bursting into tears lately over the smallest things. I don't feel well mentally or emotionally. Charlie asked me about it yesterday and I realized that deep down I'm terrified of this cancer coming back. I think if my treatment had looked different, chemo then surgery, that I'd have some reassurance that my treatment was effective...or not. I have nothing. Getting clear margins during surgery meant nothing to me since the cancer had traveled to my lymph nodes. I didn't realize until recently that this is already considered metastatic breast cancer since it left my breast and invaded my lymph nodes. This only adds to my fears. So then chemo but no radiation. I fought the "factory's" fear tactics so hard these last 7 or so months but now I'm feeling it anyway.
I just want to sleep well, drink a smoothie, and go for a walk knowing that it all is enough. I don't want my every thought to be consumed with cancer or food or "numbers" on another test, yet I can't seem to avoid it.
Ugh. Please pray for me.
#stillfighting
#nowhealing
Wednesday, November 30, 2016
Ringing the bell
I'm done. Today I'm ringing the bell in the infusion room, marking the end of my chemo treatment. My husband, my boys, and my mom will all join me. And then we're celebrating with friends tonight.
I prayed and prayed throughout the long holiday weekend and finally had peace about what to do next. It was not an easy decision and I wanted to be sure that I was not making an emotional decision...or one of fear.
Monday, I got to see the video the photographer had put together from my photo shoot. It's beautiful...but it's like I'm watching a stranger. Who is that woman?? God is gracious though. Through many of you, he pointed out things I don't often see in myself. Beauty. Strength. Joy. Dignity. Courage. It's all His, not mine! He is generous to give me what I don't deserve. Thank you, Lord. Thank you! I can finally say I'm thankful for my cancer. For every blessing, for every challenge, for every lesson, I am truly thankful. Thank you, Lord, for ALL you have given me through this cancer.
When my face went numb for the fourth time, I knew he'd also given me my answer.
I went in for my appointment yesterday with my medical oncologist. I was fully prepared to tell her that I not going to complete chemo. She beat me to it. She was calling it off. She'd already consulted with my integrative oncologist and they both agreed that the I'd already received the most beneficial doses and with the side effects I was experiencing, I needed to be done. I'm glad we're all in agreement about that. The next steps? Not so much.
Tamoxifen is next. It's an estrogen blocker and I'm not interested in it, though I understand my doctor's recommendation. I'm more concerned about the side effects that'll cause than the benefits it might have. From the National Center for Biotechnology Information: "Tamoxifen increases the chance of cancer of the uterus (womb) in some women taking it. Tamoxifen may cause blockages to form in a vein, lung, or brain. In women, tamoxifen may cause cancer or other problems of the uterus (womb). It also causes liver cancer in rats. In addition, tamoxifen has been reported to cause cataracts and other eye problems." As if that weren't enough, there's also this, "Serious and life-threatening uterine malignancies, stroke, and pulmonary embolism have been associated with tamoxifen use in the risk reduction setting and women at high risk for breast cancer. Some of these adverse events were fatal."
On the other hand: If I take it, my breast cancer might not return...or it might come back anyway. No guarantees. According to my medical oncologist, if my cancer returns it's incurable. She also made it clear that there's no way of knowing if it's gone now other than I show no symptoms of active cancer cells. She has offered both blood tests and scans to check but admits that unless it's growing the tests won't show much. The reality is that my cancer has been gone since June when I had surgery to remove it. Chemo was a preventative measure to reduce the risk of recurrence. I didn't have to do chemo. I chose to do it. I also never felt sick til I started chemo. How backward is that?
So I'm choosing to not take tamoxifen. I've discussed the pros and cons with my husband and sons and they support my decision, even if my doctors don't. I know not everyone will and a few have already expressed their thoughts on it. That's okay. It's not their life or their choice. It's mine. And it belongs to the Lord.
It's not that I plan to do nothing. Far from it. I am just choosing to take the less traveled route. I've got Jesus as my tour guide. How can it go wrong?
I will continue to ask for your prayers and support, whatever that may look like to you. My donation account will remain open since my treatment will be ongoing, though I do not plan to keep asking for donations. I know that God will continue to provide for us according to our needs.
Wednesday, November 23, 2016
Chemo Day, Round 14
Chemo Day, ROUND 14 - in pictures -
[Update below]
